Special Needs families have so many challenges. Families like my own, whose children require prosthetics have our own special challenges. Changes need to be made and advocating like a mother is required. It is tiring. That will not deter me. It will not stop me from trying to change how our children receive care and the assistance that our families need.
Here is a quick FAQ on eye prosthetics. Your questions get answered finally!
Eye Exams... no one really likes them but they are so important! As a new parent, I would have never known when was the right time. Maybe before kindergarten or only if she complained of eye issues. Explore when to get your childs first eye exam and how often to follow up.
Finally our follow up appointment with Dr. Rama came. We had also spent the last three weeks trying to find as much information as we could about Scarlett's conditions. You would think that it would be easy in this day and age. Wrong.
A few hours later, off we went back to the hospital. We get to the check in window and let them know our last name. That's when the lady says, "Are you sure you are in the right place?" We look at her completely confused and promptly ask where our baby is, if she is not where we left her.
I was running myself ragged between the fourth and fifth floors of the hospital. All I wanted to do was hold my baby, which I had not done since the pediatrician took her for her check the morning before.
When we got to the NICU, Scarlett was hooked up to monitors immediately. We were scared but just wanted to find out what was wrong with her.
Part One of a Series detailing our journey with Scarlett so far.